• Home
  • Helpful Resources
  • Reading List
  • Recommended Blogs
  • Marilyn’s Legacy: A World Without Alzheimer’s
  • About Me
  • Contact Me

The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: November-National ALZ Awareness Month

Upcoming Event: Creating Dementia Friendly Communities with Olivia Mastry

11 Tuesday Nov 2014

Posted by Ann Napoletan in Advocacy and Awareness, Events, Helpful Resources, November-National ALZ Awareness Month, Tips, USAgainstAlzheimer's

≈ 3 Comments

Tags

alzheimers, Alzheimers advocacy, alzheimers awareness, dementia, dementia friendly, national alzheimers awareness month

Olivia Mastry and ACT on Alzheimer’s have established dementia-friendly environments in 32 different communities in Minnesota.

In the next Alzheimer’s Talks call presented by USAgainstAlzheimer’s, we’ll learn more about the power of dementia-friendly communities and how to use the Minnesota model to create dementia-friendly environments in communities nationwide.

Olivia will answer questions and share her recommendations, including lessons learned and a toolkit with concrete steps in developing a plan.

Register today for the call on November 18th, from 3-4pm ET.

http://actions.usagainstalzheimers.org/p/salsa/web/common/public/signup?signup_page_KEY=6874

Postscript:  If you missed Olivia’s call, you can sign up to receive the highlights via email. Click –> here.

Share this:

  • Click to share on X (Opens in new window) X
  • Click to share on Facebook (Opens in new window) Facebook
  • Click to share on Pinterest (Opens in new window) Pinterest
  • Click to share on Reddit (Opens in new window) Reddit
  • Click to share on LinkedIn (Opens in new window) LinkedIn
  • Click to share on Tumblr (Opens in new window) Tumblr
  • Click to email a link to a friend (Opens in new window) Email
Like Loading...

National Alzheimer’s Awareness Month: Health-eBrain Study

31 Friday Oct 2014

Posted by Ann Napoletan in Advocacy and Awareness, Caregiver Burnout, Caregivers, November-National ALZ Awareness Month, Research, Sandwich Generation, USAgainstAlzheimer's

≈ Leave a comment

Tags

alzheimer's caregiver, alzheimers, alzheimers caregiver research, alzheimers caregiving, dementia

Here’s a great way to participate in National Alzheimer’s Awareness Month!

If you are one of the 15 million caregivers looking after a loved one with Alzheimer’s or another form of dementia, your input is crucial to the success of the Caregivers’ Health-eBrain Study! Please join Meryl Comer, advocate, journalist, author, and caregiver, as a participant in this important online study.

Just 30 minutes of your time will help scientists understand how the caregiving lifestyle impacts brain performance. And you can complete the questions right from your home computer! 

You may be reading this and thinking, “I’m not caring for my parent/spouse/loved one 24×7 at home. I just oversee her care and help out with things. I’m not really a caregiver.”

I get that line of thinking. There was a time when I thought being a caregiver meant caring for a loved one at home, period. However, the definition is much broader than that.

You’re a caregiver if:

  • You’re a son or daughter supporting a parent with memory problems. They might live three doors down or in another state, but regardless, you are a caregiver.
  • You missed your daughter’s school play because you were called into action to handle a crisis with your loved one. You are a caregiver.
  • You’ve had to take time off work to drive a parent to doctor’s appointments or run home to handle a crisis. You are a caregiver.
  • On Sunday afternoon, you can be found at Mom’s house setting up her meds for the coming week. You are a caregiver.
  • You’re sandwiched right between the children you’re still raising and the parent who needs your support on a regular basis. You are a caregiver.
  • You spend your lunch hour on the phone making medical appointments and dealing with insurance companies. You are a caregiver.
  • You couldn’t get away for your usual summer vacation this year. Who would look after Mom while you were away, and what if there was an emergency? You are a caregiver.
  • You coordinate in home assistance or oversee the care provided to your loved one in a care facility. You are a caregiver.
  • You can often be found at your loved one’s house helping with household tasks like cooking, cleaning, yard maintenance, caring for pets, or shopping. You are a caregiver.

If any of these sound familiar, we hope you’ll take just 30 minutes to participate in the Caregivers’ Health-eBrain Study and share the link with others.

To begin click here –> https://www.health-ebrainstudy.org

 

 

 

Share this:

  • Click to share on X (Opens in new window) X
  • Click to share on Facebook (Opens in new window) Facebook
  • Click to share on Pinterest (Opens in new window) Pinterest
  • Click to share on Reddit (Opens in new window) Reddit
  • Click to share on LinkedIn (Opens in new window) LinkedIn
  • Click to share on Tumblr (Opens in new window) Tumblr
  • Click to email a link to a friend (Opens in new window) Email
Like Loading...

WomenAgainstAlzheimer’s Launches Shadow Box Memory Project!

28 Tuesday Oct 2014

Posted by Ann Napoletan in Advocacy and Awareness, Face of Alzheimer's, Inspiration, Life After Caregiving, Mom, November-National ALZ Awareness Month, USAgainstAlzheimer's, Washington

≈ 2 Comments

Tags

alzheimers, alzheimers awareness, dementia, shadow box memory project, usagainstalzheimers, womenagainstalzheimers

Last month, I had the pleasure of attending the WomenAgainstAlzheimer’s Out of the Shadows Summit held in Washington, DC. While there were many memorable moments over those two days, one of the highlights was our evening at the National Museum of Women in the Arts.  That night, the WomenAgainstAlzheimer’s (WA2) Network launched its Shadow Box Memory Project.

Photo Credit: WomenAgainstAlzheimer’s

Prior to the Summit, attendees were invited to create shadow boxes containing pictures and memorabilia honoring loved ones affected by Alzheimer’s disease. Each shadow box was as unique and beautiful as the person that inspired it. Seeing the display was a powerful, moving reminder of why we are determined to keep fighting until we stop Alzheimer’s in its tracks.

Now WomenAgainstAlzheimer’s wants to know what you think about expanding this project, creating a national campaign to raise awareness about the disease – much like the AIDS Quilt did for AIDS. Did you know the quilt boasts an impressive 48,000 panels and a nomination for the Nobel Peace Prize??!

As we prepare to mark the beginning of National Alzheimer’s Awareness Month, please take 2-3 minutes to respond to this brief survey. Your feedback is very valuable to WomenAgainstAlzheimer’s, and your time and opinions are truly appreciated.

Click here to take the survey:  https://www.surveymonkey.com/s/GLLXNHK

Thank you so much and feel free to share this with others who have been touched by Alzheimer’s. Together we can and will make a difference!

Share this:

  • Click to share on X (Opens in new window) X
  • Click to share on Facebook (Opens in new window) Facebook
  • Click to share on Pinterest (Opens in new window) Pinterest
  • Click to share on Reddit (Opens in new window) Reddit
  • Click to share on LinkedIn (Opens in new window) LinkedIn
  • Click to share on Tumblr (Opens in new window) Tumblr
  • Click to email a link to a friend (Opens in new window) Email
Like Loading...
← Older posts
Newer posts →
© Copyright 2025
All Rights Reserved
The Long and Winding Road

Marilyn, BA (before Alzheimer's)

Contributor

Contributor

Recent Posts

  • The Latest Alzheimer’s Research Developments
  • National Caregivers’ Day: February 21, 2025
  • June 7, 2021: A Historic Day
  • UsAgainstAlzheimer’s National Alzheimer’s Summit: Don’t Miss It!
  • Happy 84th Birthday, Mom.

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 444 other subscribers

Archives

Blog Directory & Business Pages at OnToplist.com

Blog Stats

  • 138,546 hits

Meta

  • Create account
  • Log in
  • Entries feed
  • Comments feed
  • WordPress.com
stats for wordpress

Categories

Popular Posts

  • About Me
  • Thank you!
  • A Special Bond
  • Monday ... on Caregivers
  • Telling the Story
  • Hiding In the Canned Goods Aisle...and Other Stuff
  • Walking a mile in his shoes...
  • CGSN: Focus on YOU!
  • Look for me on VoiceQuilt!
  • Caregiving: Imperfections, Weaknesses, Acceptance, and Forgiveness

Recent Comments

  • Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s | The Long and Winding Road… (alzjourney.com) | Ann Campanella on Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s
  • Betty Trimble on Film Review: Angel’s Perch
  • Carol on Caregiver PTSD: Fact or Fiction?
  • (3) Ritamae Reichardt on When Caring Takes Courage: A MUST HAVE Caregiving Guide
  • Mary Jo George on June 7, 2021: A Historic Day

Pages

  • 2013-2014 News Archive
  • Helpful Resources
  • Latest News & Events
  • Postmaster General Letter – Alzheimer’s Semipostal
  • R E S I S T Resources
  • Reading List
  • Recommended Blogs
  • About Me
  • Contact Me
Coming Soon!
Marilyn's Legacy: A World Without Alzheimer's, Inc.
Stay tuned!!

Blog at WordPress.com.

  • Subscribe Subscribed
    • The Long and Winding Road...
    • Join 444 other subscribers
    • Already have a WordPress.com account? Log in now.
    • The Long and Winding Road...
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d