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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Pharma

Good News

12 Monday Nov 2012

Posted by Ann Napoletan in Falls, Mom, Orthostatic Hypotension, Pharma

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Mom’s visit to neurologist went well (getting her in and out of the car, not so much, but the actual appointment went well).  I’m feeling much better about things – hopefully not setting myself up for a big let down.

Verdict is: Orthostatic Hypotension. Today in the office, from the lying to standing position, her systolic pressure dropped from 120 to 68. No wonder she’s falling!! He tied a lot of her symptoms back to the OH, so it sounds like if we get that issue under control, things may “normalize” again (whatever “normal” is).  First step is to cut her current dosage of high blood pressure meds and monitor ortho bp for improvement. If needed, further changes will be made.

We will also have a “last resort” psych drug on hand for the next seven days. In the event that she has a very bad spell and we can’t get her reasonably settled, the lowest dose (0.5mg) can be given. BUT, I’m hoping that won’t be necessary at all.

If you’re so inclined, please pray for this initial change in bp meds to make a significant difference.

On an unrelated note, Caregivers is undergoing a facelift, and along with that it’s experiencing some growing pains. Once the site is back up, I’ll post a link to today’s piece.

Thank you all for your positive thoughts, prayers, and support. You’ll never know how much it means to Jess and I.

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Weekend Update…

11 Sunday Nov 2012

Posted by Ann Napoletan in Eason House, Mom, Pharma

≈ 2 Comments

Not as bad of a weekend as I had imagined. Sometimes, I guess it’s good to expect the worst and be pleasantly surprised. It was certainly no “piece of cake,” but the screaming wasn’t quite as bad and we actually had some amazing moments yesterday. It took awhile, but I finally got her to settle down and rest in her room, and she seemed very comforted to have me there by her side – more about that tomorrow on Caregivers.

Today, she was very restless. Lots of pacing until about an hour before dinner when she finally curled up in the recliner. Unfortunately, her mind just wouldn’t let her relax and she whined, fussed, clapped, and generally looked miserable. I gave her an Ensure, and she practically inhaled it – I held the glass and she never opened her eyes. Once that was in her tummy, she did relax and by the time I left she seemed to be sleeping peacefully.

The neurologist will see her tomorrow, and we’ll go from there. Perhaps the increased dose of Buspar is helping, but I would like for them to be able to give her something ‘as needed’ when she reaches the height of misery. Just can’t stand seeing the terror and agony in her face. Plain and simple, she shouldn’t have to go through that.

Tonight, I’m extremely grateful for Eason House and our wonderful family of caregivers. I don’t know where we’d be without them.

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Here we go again…

09 Friday Nov 2012

Posted by Ann Napoletan in Hospice, Mom, Pharma

≈ 2 Comments

The face of Alzheimer’s… a fairly good moment, actually…

Back into crisis mode. Spent 8 hours with my mom today after realizing I may as well take the afternoon off – I couldn’t focus on work. She is in a very bad place… again. I would say extremely similar to where we were back in early September.

Made lots of phone calls, more to come I’m sure. Hospice was mentioned again, but I’m not emotionally ready to go there yet after our last horrible experience. As I sat with mom last night, I had flashbacks to that awful weekend, and it made me sick to my stomach. If I have to do it (different hospice, of course!), I will, but going to wait a few days before making that decision.

Doc upped Buspar dosage, and we’re praying that will help. First increased dose was today at 3pm, so it will take a bit of time for it to kick in. The main objective is to keep her calm and settled. She is yelling, hallucinating, and picking at the air a LOT (learned a new term today – didn’t know it had a “formal” name: carphologia; doc confirmed this is a sign that “the end is near” – of course as we learned in September, “near” is a relative term).

My prayer all day today has been for her to find a peaceful place. The torment is just unbearable to watch; I can’t imagine how she must feel actually living it.

Neurologist is going to see her on Monday and assess the situation. Also sending urine out to lab; always worth checking for a UTI.

That’s it for now…. there is a Sominex calling my name. Tomorrow’s going to come too soon.

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Marilyn, BA (before Alzheimer's)

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