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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Ruminations

Emotions, Milestones, and Change

16 Friday Aug 2013

Posted by Ann Napoletan in A Place for Mom, Advocacy and Awareness, Alzheimers.net, Blogging, Caregivers, Caregivers.com, Grieving, Helpful Resources, Life After Caregiving, Mom, Ruminations, Saying Goodbye

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That faceAh, it feels good to stop for a bit and just sit back and breathe. The past couple of weeks have been emotional. I’ve made some difficult decisions, felt some great triumphs, sobbed uncontrollably, and felt overwhelmed with joy. Wow, talk about a mixed bag. No wonder I’m tired! (((smile)))

Another Milestone

Yesterday marked the 8-month anniversary of Mom’s passing. Truthfully, I can’t believe it’s August, and I really can’t wrap my head around the fact that she’s been gone eight months. How can that be? It was just about a year ago that Rodney came to Eason House and sang that beautiful song to her… one of my favorite memories. So bittersweet.

It was the end of August last year when things started to decline rapidly. A year ago. Four months later, she was gone. The other night, I wrote a piece titled, And in the Final Analysis, for Caregivers. I struggled with it initially, and then the words flowed easily and freely, like clear crisp water trickling down a gentle stream … It took me to some places I hadn’t been since those absolutely dreadful last three weeks of her life. Ultimately, I think it speaks to where I am right now – in my head and in life.

A Change in Direction

And that brings me to a decision I made a week or so ago. I’ve been writing for A Place for Mom for a year now, and have enjoyed every second of it. The team out in Seattle has embraced me as part of their group and I’ve learned so much and grown a great deal as a writer. Perhaps most importantly, those same folks I’m pleased to call my friends have given me the confidence to go forward and continue reaching out to others through my writing. It’s without question one of the most fulfilling things I’ve ever done.

But, all of that said, I’ve decided to step back and slow things down a bit. Yesterday’s Caregivers post was my last as a contract blogger for APFM. I hope to contribute as a guest from time to time, but I’m going to focus my attention on redesigning this blog and making it what I know it can be – a comfortable, compassionate place where families traveling this Alzheimer’s/dementia journey can come for support, solace, and information from someone who has been there.

A Note of Appreciation

So… all of that said, I hope you will continue to follow me here on The Long and Winding Road and spread the word to others who may be interested. In return, I will do my best to provide insightful posts from the heart, as well as the latest news, links to other valuable resources, and much more.

As I mentioned, I also hope to do some guest posts for APFM and others, so I’ll keep you “posted” (no pun intended) on that. In the meantime, I sincerely thank everyone who has taken the time to read my writing, whether here or over at Caregivers or ALZ.net. Being able to connect with other caregivers and family members has helped me through what has been a very difficult year. And just the fact that you care enough to keep coming back is beyond humbling…

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Remembering…

11 Sunday Aug 2013

Posted by Ann Napoletan in Eason House, Inspiration, Ruminations, Saying Goodbye

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jeanne-eason-91st-birthdayToday, I attended the funeral of Jeanne Fox Eason, a beautiful woman who lived an extraordinary life by anyone’s definition. Mrs. Eason was 93-years-old when she joined her beloved husband, Warren, in Heaven last month, and the stories told this morning read like a magnificent novel set in the 1940’s.

What Dreams Are Made Of

Close your eyes for a moment and imagine: Corpus Christi, Texas, WWII. A lovely young Navy WAVE Link Instructor is teaching instrument navigation to student pilots. It’s there that she meets a handsome young naval pilot who will become her husband of 63 years.

Mrs. Eason was one of the ladies who lived with my mom at Eason House. In fact, the house was inspired by and named for Dr. and Mrs. Eason, and their memory will live on in that very special place forever more.

A Special Poem

The following poem was read during the memorial service, and I found it very moving. Just as a gift cannot be “ungiven,” nor can the memories of our loved ones be unraveled, for they are so deeply interwoven into the fabric of our own hearts…

All Souls, by May Sarton
Did someone say that there would be an end,
an end, Oh, an end to love and mourning?
What has been once so interwoven cannot be raveled,
not the gift ungiven.
Now the dead move through all of us still glowing.
Mother and child, lover and lover mated,
are wound and bound together and enflowing.
What has been plaited cannot be unplaited–
only the strands grow richer with each loss
and memory makes kings and queens of us.
Dark into light, light into darkness, spin.
When all the birds have flow to some real haven,
we who find shelter in the warmth within,
listen and feel new-cherished, new-forgiven,
as the lost human voices speak through us and blend our complex love,
our mourning without end.

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Week in Review …

22 Monday Jul 2013

Posted by Ann Napoletan in Advocacy and Awareness, Alzheimers.net, Blogging, Caregivers, Caregivers.com, Eason House, Events, Films, Inspiration, Life After Caregiving, Mom, Ruminations

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sunshineLast week was a busy one.. the heat has hit Central Ohio full force and we have been sweltering! It took awhile, but it appears as though summer is here.

Monday (July 15) marked 7 months since my dear mom went to Heaven and I’ve been thinking about her so much. On Thursday, driving home from work, I had one of those moments where for a split second it didn’t seem possible that she’s really gone. Those tend to be followed by what feels like a very hard punch in the stomach… I wonder if that will go on forever…

One of the ladies at Eason House passed away suddenly last week. She was 93, but you would have never guessed it from looking at her! I always told her what beautiful skin she had and she would just beam and say, “I’m 90 years old, you know…” She will be missed, but it makes my heart smile to think of her now reunited with her beloved husband. I imagine Dr. E. was waiting at Heaven’s gates and greeted his wife with open arms…

Hospital Wristband Project

Monday’s Caregivers post was on Gary LeBlanc’s Alzheimer’s/Dementia Hospital Wristband Project. Gary is doing extraordinary work in Florida and provided an update toward the end of the week. Seems as though the pilot is a go for September 3rd and things are falling into place (with a ton of hard work, no doubt).

It is official. We have a starting date. Starting September 3rd, all dementia patients will have the Purple Angel Logo attached to their wristbands at Brooksville Regional Hospital. Training for all hospital staff in Dementia Care will be held in 8 sessions, 4 mornings and 4 evenings in order to cover all hospital personal staring around Aug. 18th. (Still fine tuning the training dates.) The training will be done by the Alzheimer’s Association Gulf Coast Chapter.

Keep up the fantastic work, Gary!

Life After Caregiving

Elaine Mansfield and Martha Stettinius were kind enough to allow me to interview them for Thursday’s Caregivers piece. I had been reflecting on how the past 9 years truly changed who I am and wanted to write about it. Having been caregivers themselves, Elaine and Martha provided insightful thoughts, discussing how their own journeys resulted in personal transformation.

Angel’s Perch

I did a post about the recently released movie Angel’s Perch on Alzheimers.net this week. This indie film sets aside the statistics we so commonly hear in favor of putting a face on the disease. Featuring the stunning backdrop and history of lovely Cass, West Virginia, it promises to have something for everyone.

I’m still hard at work promoting a Columbus screening, which is scheduled for 8/14 at the Easton AMC 30. The catch? We’re required to have 75 seats reserved for purchase by 8/7. We’re almost halfway there with about two weeks left to go. If you’re in the area and would like to join us for this special evening, please reserve your tickets today!

Until next time, here’s wishing everyone a peaceful week. Keep cool and carry on!

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Marilyn, BA (before Alzheimer's)

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