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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Safety

The days are running together…

05 Wednesday Dec 2012

Posted by Ann Napoletan in HomeReach, Hospice, Mom, Ruminations, Safety

≈ 2 Comments

photo-77

The picture of frustration: Clenching her balled up robe…

In bullets …

  • Last night, I woke Mom up every four hours for lorazepam… even that didn’t prevent her from being up from 4am this morning until 9pm fussing, yelling, and crying… and completely exhausted. Hospice doc increased dose and I gave the first one tonight. She finally went to sleep around 9. Very restless, though.
  • I went home and slept for about 3 hours this afternoon. A three hour nap never felt so good.
  • Geri-chair came today – she doesn’t love it.
  • I realized today that I don’t remember what “normal” life and routine is like… I’ve only been doing this for 10 days and I don’t know how in the world people do it long term. I feel like I’m in a fog, and there’s definitely a higher power helping me with each move I make. This is not me.
  • I’m worried about work and what to do about next week, but trying to take it one day at a time… praying that God provides the answers I need.
  • I am going to try to stay up until midnight lorazepam, then get some sleep. We moved the love seat back to mom’s room again; I’ve put her bed all the way down to the floor, and the crash pad between the love seat and bed. For some reason, she wants to be right by the edge of the bed. I move her to the middle and she moves back to the edge…
  • Hospice nurse will be out again tomorrow.

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Short Update

04 Tuesday Dec 2012

Posted by Ann Napoletan in Eason House, Falls, HomeReach, Hospice, Mom, Safety

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photo-76It was a crazy busy day and I’m beat, so this will be a short update….

Susie kicked me out around 7:30am to go home and sleep… I didn’t argue much – went home and laid down, slept for a couple of hours before the dog started barking and the phone started ringing. The last call was from Eason House letting me know that Mom had fallen.

Jumped in the shower long enough to get wet, then called the hospice nurse and drove back over here. Mom has a good sized knot on her forehead, which I imagine will be a nice, big bruise in a day or so, but otherwise, she seemed okay. Mary, our nurse, arrived shortly after I did and checked her out.

Tonight, I ordered a chair alarm – something we hadn’t thought of previously, but apparently it helps quite a bit with a resident at Crandall House who is a serious fall risk.

Without going into a lot of detail, I am VERY pleased with HomeReach; I truly feel that we (both Jess and I *and* our Eason House family) have another level of support now, that we probably needed awhile ago. Before Mary left, she had ordered a bedside pad so that if Mom rolls out of bed, the pad will be there. We also can lower her (hospital) bed down to the floor. She also ordered a geri chair which will be delivered tomorrow. I definitely think that is going to be helpful.

We are still discussing whether or not Freidenberg will continue to consult… that’s up in the air. Our team is meeting tomorrow and that is on the agenda.

Hospice nurse will be back Thursday and then doc will visit on Friday.

After all the commotion this afternoon, I ran to Walgreen’s, then decided to stop at home to change clothes and grab food. While I was there, a delivery came – and OH MY GOODness! What a surprise! A box from Crumbs bakery – a half dozen cupcakes the size of my head! Vanilla cake with coconut frosting. Out of this world. A dear sweet friend, realizing how much I love Crumbs, had them sent. I burst into tears when I saw who they were from. Overwhelming kindness… Once again, reminding me that this experience is making me want to be a better person. Thank you, beautiful Christy.

I need to write a quick post for Caregivers, then I’m going to try to get some sleep while Mom sleeps. I’m exhausted.

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Aetrex GPS Tracking Shoes

22 Wednesday Feb 2012

Posted by Ann Napoletan in Products, Safety, Wandering

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Check out this video from CNET introducing us to shoes that use GPS tracking technology.  These sneakers are designed to help Alzheimer’s and dementia sufferers maintain their independence by providing a tracking mechanism, should they wander off.

Not long before we made the decision to move mom out of her house, we had several issues with her “going for a walk” and actually wandering off, unable to find her way home.  Believe me, getting a phone call telling you that your mother’s neighbor found her walking along a busy street at rush hour is more than slightly disconcerting.

Even after we moved her to a large, private pay AL facility, there were some frightening moments.  She wore an ankle transmitter that would set off an alarm if she walked out of the building; however, due to the device malfunctioning or, as we later found, sheer negligence, this system was far from foolproof.  Despite this safeguard, she did have at least two serious elopement issues.  Both times, she was found down the street – once on a very cold night (after dark) in an area with no sidewalks.  She was actually spotted by a neighbor, who was concerned when he saw a woman, appearing to be confused, walking in the middle of the street. Thankfully, the good samaritan took her to his house and called the police.

The second incident was similar, but she headed in a different direction and was found at a very busy intersection.  Again, she was fortunately rescued by a concerned onlooker and safely returned to the AL facility.

Wandering is such a frightening issue, and elopement is a real concern in the large facilities where the staff-to-resident ratio is unimaginable.  We were so thankful to have a happy ending both times, but these are just examples of what can happen – even in a $5k / month private pay assisted living facility.

The Aetrex GPS tracking shoes could definitely be a blessing under the right circumstances.  Of course, there would be a couple of obvious issues.  They require charging, and they do have to be worn in order to serve their purpose.  That sounds like a small thing, but if you’ve dealt with someone suffering from ALZ, you know that even following simple directions can be impossible for them.  I do think in the right situation, they could provide some peace of mind for caregivers, and you can’t put a price tag on that.

On a similar note, if you know someone dealing with these issues, please make sure they are aware of the Alzheimer’s Association’s Safe Return program in conjunction with MedicAlert.  For a small fee, this can truly be a life saver….

Striking a balance between allowing independence and assuring safety can be extremely challenging.  The more aids and tools you have at hand, the more likely it is that your loved one will remain happy and safe.

Until next time… Carpe diem…

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Marilyn, BA (before Alzheimer's)

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