• Home
  • Helpful Resources
  • Reading List
  • Recommended Blogs
  • Marilyn’s Legacy: A World Without Alzheimer’s
  • About Me
  • Contact Me

The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Tips

Round Up: The Latest From Around the Web

26 Tuesday Aug 2014

Posted by Ann Napoletan in Advocacy and Awareness, Books, Caregiver Burnout, Caregivers, Early Onset, Face of Alzheimer's, Helpful Resources, Music and Art, Round Up, Safety, Sandwich Generation, Silver Alert, Technology, Tips, Wandering, Washington

≈ Leave a comment

Tags

alzheimers, alzheimers art, caregivers, caregiving, dementia, sandwich generation, wandering

lasso.gifCheck out these tidbits gathered from around the web over the past week….

Listen to this edition of the Diane Rehm radio show as Emmy award winning journalist, Meryl Comer, talks about her new book, Slow Dancing with a Stranger. Meryl’s husband was diagnosed with early onset Alzheimer’s at age 58, and she cared for him at home for two decades. Dr. Harvey Gralnick led hematology and oncology research at the National Institutes of Health; a brilliant man and a sobering reminder that Alzheimer’s does not discriminate. Don’t miss this poignant and enlightening conversation.

Kudos to U.S. Senator Bob Casey who announced his plans to introduce the Caregiver Corps bill. This legislation is intended to empower community agencies to build and train a pool of volunteer caregivers to provide assistance to families in need. Read more about Casey’s proposed bill in this article from LancasterOnline.

With the percentage of the U.S. population age 65 and older exploding in coming years, what exactly are we doing to prepare? As Anne Hays Egan suggests in this piece for NonProfits Online, communities should be addressing plans for the “Silver Wave” now. Time is of the essence – we can’t afford to wait.

Alzlive shares an interesting article about Evermind, a small device that plugs into wall outlets and connects to various household appliances (e.g. coffee maker, television, bedside lamp). The gadget monitors when each appliance is turned off or on and sends notifications via text message or email. A change in routine serves as an alert to distant caregivers that they should check in to ensure their loved one is okay.

This fascinating piece from The Atlantic explores the emergence of artistic talents after a dementia diagnosis. How is it that someone with severe dementia can sometimes communicate beautifully through music or art? The key is in understanding that while dementia doesn’t impact the entire brain. Undamaged areas may actually “wake up” to reveal these artistic abilities that had been previously suppressed by healthy parts of the brain.

Learn more about Project Lifesaver, a program aimed at finding missing persons and returning them safely to their homes.  Over 1,300 first responder agencies in 47 states participate, and PLI states their recovery times average 30 minutes – 95% less than standard search operations. Members wear a small GPS device that tracks their whereabouts, and rescuers are trained in how to approach and communicate with individuals suffering from cognitive impairment.

In her recent article for MariaShriver.com, Ellen Woodward Potts focuses on the sandwich generation, offering coping tips for caregivers who are stretched too thin. More and more Americans find themselves caring for aging parents while still raising children, and the associated stress can be overwhelming at best and a serious health risk at worst.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

Advice from an Alzheimer’s Daughter

08 Friday Aug 2014

Posted by Ann Napoletan in Blogging, Caregivers, Expectations, Helpful Resources, Life After Caregiving, Ruminations, Tips

≈ 2 Comments

Tags

alzheimers, alzheimers lessons, alzheimers tips, caregiving, dementia

Looking back, there were so many things I could have handled differently over the course of my mom’s illness. To put it bluntly, I just didn’t have a clue! The result? Life became a series of reactions to things I couldn’t control.

If my experience can help ease another family’s journey even just a bit, maybe it wasn’t all for naught….  To that end, I’d like to thank the fine folks at Better for inviting me to contribute Advice from an Alzheimer’s Daughter to their blog. I hope you’ll enjoy the article and find some of the tips useful.

Until next time….

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

Elaine Mansfield on Advance Directives: Be Specific

27 Sunday Jul 2014

Posted by Ann Napoletan in Books, End of Life Planning, Family, Grieving, Helpful Resources, Living Will, Mom, Ruminations, Saying Goodbye, Tips

≈ 5 Comments

Tags

advance directives, alzheimers, dementia, end of life decisions, grief, grieving, living will

Elaine Mansfield, Author

One of the greatest gifts my mom gave me in this lifetime was having her advance directives in order long before Alzheimer’s was so much as a blip on our radar. I remember when she had them done. At that point, I thought, “Okay, that’s done, but I really don’t want to think about. Furthermore, it’ll be forever until I HAVE to think about it.”

And life goes on….

Then one day, in a complete twist of what you believed to be fate, life changes drastically and forever.

Alzheimer’s.

Even with the documents in place and my mom’s wishes crystal clear, the end was agonizing. No one can prepare you for those final days and the sense of helplessness you’ll feel. However, I can’t begin to imagine how exponentially more difficult it would have been if the medical team had been looking to me to make those decisions no one ever wants to be faced with.

Please take a few moments to read this important, thought-provoking piece by my friend, author Elaine Mansfield.

Why I Added Detailed
Advance Directives to my Living Will

 

Elaine’s article has me rethinking my own Living Will and considering adding more detail as she and her husband, Vic, did. This specificity leaves no room for interpretation, and the fact that it’s handwritten also adds a certain level of comfort. It’s one thing to see a typewritten document initialed and signed by your loved one, but seeing these details written in their own hand – I think it might help the mind and heart to reconcile, finding a place of certainty and peace.

If nothing else, I hope this article will encourage you to give some thought to advance directives – particularly if you don’t have anything in place. Don’t leave these decisions to your loved ones; when the time comes, they will be struggling enough without having this additional weight on their shoulders.

___

Elaine Mansfield’s book, Leaning into Love: A Spiritual Journey through Grief will be on shelves in October. It’s one you’ll definitely want to add to your reading list. You can find Elaine on Facebook and Twitter, and of course, you can visit her blog to experience more of her beautiful writing.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...
← Older posts
Newer posts →
© Copyright 2025
All Rights Reserved
The Long and Winding Road

Marilyn, BA (before Alzheimer's)

Contributor

Contributor

Recent Posts

  • The Latest Alzheimer’s Research Developments
  • National Caregivers’ Day: February 21, 2025
  • June 7, 2021: A Historic Day
  • UsAgainstAlzheimer’s National Alzheimer’s Summit: Don’t Miss It!
  • Happy 84th Birthday, Mom.

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 443 other subscribers

Archives

Blog Directory & Business Pages at OnToplist.com

Blog Stats

  • 143,637 hits

Meta

  • Create account
  • Log in
  • Entries feed
  • Comments feed
  • WordPress.com
stats for wordpress

Categories

Popular Posts

  • About Me
  • Thank you!
  • A Special Bond
  • Monday ... on Caregivers
  • Telling the Story
  • Hiding In the Canned Goods Aisle...and Other Stuff
  • Walking a mile in his shoes...
  • CGSN: Focus on YOU!
  • Look for me on VoiceQuilt!
  • Caregiving: Imperfections, Weaknesses, Acceptance, and Forgiveness

Recent Comments

  • Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s | The Long and Winding Road… (alzjourney.com) | Ann Campanella on Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s
  • Betty Trimble on Film Review: Angel’s Perch
  • Carol on Caregiver PTSD: Fact or Fiction?
  • (3) Ritamae Reichardt on When Caring Takes Courage: A MUST HAVE Caregiving Guide
  • Mary Jo George on June 7, 2021: A Historic Day

Pages

  • 2013-2014 News Archive
  • Helpful Resources
  • Latest News & Events
  • Postmaster General Letter – Alzheimer’s Semipostal
  • R E S I S T Resources
  • Reading List
  • Recommended Blogs
  • About Me
  • Contact Me
Coming Soon!
Marilyn's Legacy: A World Without Alzheimer's, Inc.
Stay tuned!!

Blog at WordPress.com.

  • Subscribe Subscribed
    • The Long and Winding Road...
    • Join 443 other subscribers
    • Already have a WordPress.com account? Log in now.
    • The Long and Winding Road...
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d