• Home
  • Helpful Resources
  • Reading List
  • Recommended Blogs
  • Marilyn’s Legacy: A World Without Alzheimer’s
  • About Me
  • Contact Me

The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Uncategorized

Taking a little break…

09 Wednesday Jan 2013

Posted by Ann Napoletan in Uncategorized

≈ Leave a comment

Currently sick with the crud that seems to be going around… will be back soon.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

Reflection…

19 Wednesday Dec 2012

Posted by Ann Napoletan in Mom, Ruminations, Saying Goodbye, Support system, Uncategorized

≈ Leave a comment

Ran some errands today, picked up a few things for Mom’s Celebration of Life. Jess also talked me into making some pizzelles. We had two irons going, so it didn’t take long and I’m glad she suggested it; otherwise, it’s very unlikely I would have made them. Brought back memories of the last time Mom helped us – here at my house in 2009. She was living at Outlook Manor at the time. I remember she sat down right away and knew just what to do, but lost interest quickly. Smart woman – she decided she’d rather eat the cookies than press them.  (((smile)))

mom1

One of my all time favorite photos – Christmas Eve – Good Ol’ Days

Tonight we sorted through a huge pile of photo albums and pulled more to be scanned for the slide show. I thought we were done until Jess found another huge tub of albums I had forgotten about. Perhaps we’ll get through those tomorrow night and then I can start pulling some jpg’s together.

I am vacillating between being overwhelmed and thinking we have everything covered. And, to be honest, what I’d like to do is just curl up with my favorite blanket for the rest of the winter. Probably a good thing we have so much to do, actually. I’m also extremely thankful for Jess at this time. She’s been staying here at the house, and that has been more of a comfort than I expected.

It’s odd because I usually love my solitude, but not so much at the moment. On the other hand, I really don’t want to be around or even talk to other people right now. Hard to explain. I don’t even really understand it myself… to be honest, the idea of Mom being gone doesn’t even feel real.

Social worker from Kobacker House called today. I guess someone from the “bereavement team” will be calling soon. Their services are available for up to 13 months. I haven’t decided yet whether I’ll take advantage or not…

One thought that keeps running through my head is something a friend said a couple of days ago. Maybe God called Mom home at this time so that she could help comfort the precious babes from Sandy Hook Elementary. When I close my eyes, I can almost envision that – she loved little ones so much. The thought brings me some measure of peace. Just to think of her healthy again and wearing a big smile on her face… surrounded by those sweet children.

The Dispatch ran the obituary today, and I believe it will be in the Butler Eagle tomorrow. I’m pleased with the way it turned out. I had written it while sitting at Kobacker House the night before she passed…

Here are some more of my favorite photos from happier times.

mom2

Being silly – 1986

mom3

Another favorite Christmas image…

mom4

Mom’s retirement hot air balloon ride. She’d always wanted to do this, and I’m so glad we didn’t put it off…

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

Christmas came after all…

09 Sunday Dec 2012

Posted by Ann Napoletan in Care Options, Eason House, Holidays, HomeReach, Hospice, Kobacker House, Mom, Pharma, Ruminations, Support system, Uncategorized, Weight Loss

≈ Leave a comment

I arrived at home tonight to find that my two very best friends had been here this afternoon with their elf uniforms on. They completely decorated my house for Christmas, tree and all. Even brought in firewood and left an assortment of hot cocoa and marshmallows. I burst into tears when I saw it and have been sitting here enjoying the tree for the past hour.

2012 xmas collage

I wasn’t going to do any decorating this year; just didn’t seem like there was any point. But, wow, to walk in that door and see this… I actually feel like I have a bit of holiday spirit now. What an amazing and thoughtful thing for Debby & Sheila to do. Beyond blessed to have friends like this…

We had visitors in and out all day at Kobacker House, which was nice. Jess and I continue to be overwhelmed by the outpouring of support from all of our friends, old and new. I know I probably sound like a broken record, but I can’t express my appreciation enough. Thank you for lifting us up in prayer and through your many acts of incredible kindness and generosity. Today, I even received a FB message from a wonderfully talented local musician Jess and I met a couple of years ago, offering to come in to KH and sing for Mom…

Emily and Mom…

As we sat watching Mom sleep across the room this afternoon, I told Jess that I just can’t even believe any of this is real. Seeing her like this is so hard, and sometimes I feel like I’m walking around in a haze, this is really just a nightmare, and I will eventually wake up. How in the hell did we get to this point? It seems like she’s had this disease forever, but the decline in the past three months has been stunning.

…Mama… ♥

She was awake very little today, and even when she was, she wasn’t. Her eyes would open for awhile, but she wasn’t really there. Just staring off into space. No reaction to our voices… nothing. She did seem to be comforted when I stroked her head, but that was about it. Hasn’t had anything to eat or drink. A few drops of water from a toothette swab and a syringe-ful of Ensure as a med chaser.

She had a rough overnight and they did give her morphine about 2am. As mentioned, she wasn’t awake much today, but did have some stretches of agitation this afternoon. In two instances, I was ready to give morphine, but the nurse suggested giving her “regular” meds first to see if they would calm her. Sure enough, the buspar and lorazepam worked both times. KH definitely does not push heavy duty drugs as I thought they would; in fact, if anything the opposite is true. Of course, they do leave the final decision up to the family and had we chosen morphine, they would have administered it.

We had a wonderful Comfort Keeper again today. The fact that HomeReach pays for that service is a true godsend. Just the ability to go home at night and sleep knowing for certain that Mom will never be left alone is so reassuring. Ciara was there from 7a to 7p today and kept notes during her entire shift, then typed them up for me before leaving. Every detail of those 12 hours was documented, from people coming in and out of the room, to changes, to repositioning, meds, applying lip balm, et cetera. I was very impressed. She will be there with us again tomorrow, but the 7p to 11p girl seemed very nice as well.

Ciara, from Comfort Keepers, sitting with Mom…

I really can’t say enough about Kobacker House. Not only is it a beautiful facility ($32 million, all paid for through donations), but the staff has been wonderful. All of the nurses and PCT’s have been friendly and compassionate and have been gentle and kind with Mom. Today, we met the canine companion, Lydan, a yellow lab – one of the sweetest dogs I’ve ever seen. I may have said this yesterday, but it bears repeating. Columbus is very fortunate to have KH.

Kobacker House Christmas…

KH – Beautiful multi-denominational chapel…

KH – one of the garden/courtyard areas…

I feel like we’re where we need to be right now; just knowing we can have a nurse bedside at the push of the button provides peace of mind during what is a terribly uncertain time…  We definitely made the right decision, as difficult as it was. And our Eason House family is still with us every step of the way. Susie was there twice today, along with Renee and Lorraine. It never ceases to amaze me just how much they love my mom…

The worst part of the day is waking up in the morning; the moment my brain engages enough to remember what’s going on. Sometimes I think it would be easier to stay awake 24×7 than to wake up to that realization over and over again. As I said, I just can’t believe this is happening… I can’t believe it’s my mom laying in that bed looking so drawn and frail…

Beautiful flowers from friends Rodney, Sherrie, Erin, Ryan, and Michael...

Beautiful flowers from friends Rodney, Sherrie, Erin, Ryan, and Michael…

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...
← Older posts
Newer posts →
© Copyright 2025
All Rights Reserved
The Long and Winding Road

Marilyn, BA (before Alzheimer's)

Contributor

Contributor

Recent Posts

  • The Latest Alzheimer’s Research Developments
  • National Caregivers’ Day: February 21, 2025
  • June 7, 2021: A Historic Day
  • UsAgainstAlzheimer’s National Alzheimer’s Summit: Don’t Miss It!
  • Happy 84th Birthday, Mom.

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 443 other subscribers

Archives

Blog Directory & Business Pages at OnToplist.com

Blog Stats

  • 143,774 hits

Meta

  • Create account
  • Log in
  • Entries feed
  • Comments feed
  • WordPress.com
stats for wordpress

Categories

Popular Posts

  • About Me
  • Thank you!
  • A Special Bond
  • Monday ... on Caregivers
  • Telling the Story
  • Hiding In the Canned Goods Aisle...and Other Stuff
  • Walking a mile in his shoes...
  • CGSN: Focus on YOU!
  • Look for me on VoiceQuilt!
  • Caregiving: Imperfections, Weaknesses, Acceptance, and Forgiveness

Recent Comments

  • Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s | The Long and Winding Road… (alzjourney.com) | Ann Campanella on Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s
  • Betty Trimble on Film Review: Angel’s Perch
  • Carol on Caregiver PTSD: Fact or Fiction?
  • (3) Ritamae Reichardt on When Caring Takes Courage: A MUST HAVE Caregiving Guide
  • Mary Jo George on June 7, 2021: A Historic Day

Pages

  • 2013-2014 News Archive
  • Helpful Resources
  • Latest News & Events
  • Postmaster General Letter – Alzheimer’s Semipostal
  • R E S I S T Resources
  • Reading List
  • Recommended Blogs
  • About Me
  • Contact Me
Coming Soon!
Marilyn's Legacy: A World Without Alzheimer's, Inc.
Stay tuned!!

Blog at WordPress.com.

  • Subscribe Subscribed
    • The Long and Winding Road...
    • Join 443 other subscribers
    • Already have a WordPress.com account? Log in now.
    • The Long and Winding Road...
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d