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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: USAgainstAlzheimer’s

Alzheimer’s Talks: Dr. Rudy Tanzi

16 Sunday Nov 2014

Posted by Ann Napoletan in Advocacy and Awareness, Events, Helpful Resources, Research, USAgainstAlzheimer's

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Tags

alzheimers, alzheimers in a dish, alzheimers research, dementia, rudy tanzi, usagainstalzheimers

If you missed the October Alzheimer’s Talks call, I hope you’ll take time to listen to the recording. We don’t often have the opportunity to hear directly from a leading researcher, but thanks to our friends at USAgainstAlzheimer’s, we were able to spend 60 minutes with Dr. Rudy Tanzi last month. The discussion was fascinating, informative, and full of reasons to be hopeful.

Take a listen as Dr. Tanzi talks about his team’s recent “Alzheimer’s in a Dish” discovery and how it will allow researchers to screen potential drugs 10 times faster and cheaper than ever before. During the second half of the call, he takes questions from listeners – again, giving us rare insight into the latest research.

To listen, click here –> A Major Breakthrough: Alzheimer’s in a Dish – Dr. Rudy Tanzi, Alzheimer’s Talks – October 2014

Also, be sure to register for the November Alzheimer’s Talks discussion with Olivia Mastry of ACT on Alzheimer’s. Ms. Mastry will share Minnesota’s very successful model for creating dementia friendly communities.

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Upcoming Event: Creating Dementia Friendly Communities with Olivia Mastry

11 Tuesday Nov 2014

Posted by Ann Napoletan in Advocacy and Awareness, Events, Helpful Resources, November-National ALZ Awareness Month, Tips, USAgainstAlzheimer's

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Tags

alzheimers, Alzheimers advocacy, alzheimers awareness, dementia, dementia friendly, national alzheimers awareness month

Olivia Mastry and ACT on Alzheimer’s have established dementia-friendly environments in 32 different communities in Minnesota.

In the next Alzheimer’s Talks call presented by USAgainstAlzheimer’s, we’ll learn more about the power of dementia-friendly communities and how to use the Minnesota model to create dementia-friendly environments in communities nationwide.

Olivia will answer questions and share her recommendations, including lessons learned and a toolkit with concrete steps in developing a plan.

Register today for the call on November 18th, from 3-4pm ET.

http://actions.usagainstalzheimers.org/p/salsa/web/common/public/signup?signup_page_KEY=6874

Postscript:  If you missed Olivia’s call, you can sign up to receive the highlights via email. Click –> here.

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National Alzheimer’s Awareness Month: Health-eBrain Study

31 Friday Oct 2014

Posted by Ann Napoletan in Advocacy and Awareness, Caregiver Burnout, Caregivers, November-National ALZ Awareness Month, Research, Sandwich Generation, USAgainstAlzheimer's

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Tags

alzheimer's caregiver, alzheimers, alzheimers caregiver research, alzheimers caregiving, dementia

Here’s a great way to participate in National Alzheimer’s Awareness Month!

If you are one of the 15 million caregivers looking after a loved one with Alzheimer’s or another form of dementia, your input is crucial to the success of the Caregivers’ Health-eBrain Study! Please join Meryl Comer, advocate, journalist, author, and caregiver, as a participant in this important online study.

Just 30 minutes of your time will help scientists understand how the caregiving lifestyle impacts brain performance. And you can complete the questions right from your home computer! 

You may be reading this and thinking, “I’m not caring for my parent/spouse/loved one 24×7 at home. I just oversee her care and help out with things. I’m not really a caregiver.”

I get that line of thinking. There was a time when I thought being a caregiver meant caring for a loved one at home, period. However, the definition is much broader than that.

You’re a caregiver if:

  • You’re a son or daughter supporting a parent with memory problems. They might live three doors down or in another state, but regardless, you are a caregiver.
  • You missed your daughter’s school play because you were called into action to handle a crisis with your loved one. You are a caregiver.
  • You’ve had to take time off work to drive a parent to doctor’s appointments or run home to handle a crisis. You are a caregiver.
  • On Sunday afternoon, you can be found at Mom’s house setting up her meds for the coming week. You are a caregiver.
  • You’re sandwiched right between the children you’re still raising and the parent who needs your support on a regular basis. You are a caregiver.
  • You spend your lunch hour on the phone making medical appointments and dealing with insurance companies. You are a caregiver.
  • You couldn’t get away for your usual summer vacation this year. Who would look after Mom while you were away, and what if there was an emergency? You are a caregiver.
  • You coordinate in home assistance or oversee the care provided to your loved one in a care facility. You are a caregiver.
  • You can often be found at your loved one’s house helping with household tasks like cooking, cleaning, yard maintenance, caring for pets, or shopping. You are a caregiver.

If any of these sound familiar, we hope you’ll take just 30 minutes to participate in the Caregivers’ Health-eBrain Study and share the link with others.

To begin click here –> https://www.health-ebrainstudy.org

 

 

 

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Marilyn, BA (before Alzheimer's)

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