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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: dementia

Happy Birthday, Mom….

12 Sunday Oct 2014

Posted by Ann Napoletan in Advocacy and Awareness, Grieving, Inspiration, Life After Caregiving, Mom, Ruminations, Smiles

≈ 2 Comments

Tags

alzheimers, dementia, grief, grieving

Dear Mom,

Happy Birthday! I trust there were lots of laughs and plenty of cake in Heaven as it must have been a celebration unlike anything we could have pulled off here. Your parents, Aunt Shirley, Aunt Helen and Uncle George, and so many others who love you.

We celebrated you by doing things you would have enjoyed this weekend, but I guess you already know that. If I’m not mistaken, I looked up on Saturday and saw you smiling down on us. It was likely the most beautiful weekend of October, two gorgeous days strung together. Nothing but sunshine and blue skies. Another tribute to your beautiful life, no doubt.

You are missed by so many people, and I heard from a few of your favorites today. It was nice to know so many friends were thinking of you – and us – all weekend. It just underscores the impact you had on so many lives, and my heart sings to know your legacy lives on.

It helps to think of you as you are today; whole, healthy, laughing, talking, and free of the torment Alzheimer’s often brought you. But, I’ll be very honest – I’m pissed. Furious that this disease took you much, much too soon. Today you would have been 78, and before AD stormed into our lives I would have imagined us traveling and enjoying life – you still in great health at this age. Damn Alzheimer’s for turning my plan – and our world – upside down.

That faceThe fact is, it would be so easy to sit and cry every single day about what we’ve all lost and how unfair it is. Although the excruciating, knife-through-the-heart pain of those initial weeks and months following your death has faded, I think I miss you now more than ever. So many life changes and countless moments where I’ve thought, “I wish I could talk to mom.”

Gone too soon, in more ways than one.

Each day, I try to live in a way that honors your life and makes you proud… I hope you know that despite your physical absence, you are still the guiding light in my life. Tonight, I lit your candle, and just as its flame stands tall and bright, so does your beautiful memory, unwavering strength, and enduring love.

With all my love,

Ann  💜

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Good Day Columbus Helps Bring Awareness to Alzheimer’s

03 Friday Oct 2014

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn Central Ohio, Books, Walk to End ALZ

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Tags

#endalz, alzheimers awareness, dementia, Walk to End Alzheimer's

Good Day Columbus Still 09.15.14Thank you to Good Day Columbus for shining the spotlight on Alzheimer’s awareness during the month of September. In this segment, I shared my mom’s story with Shawn and Marshall and discussed Chicken Soup for the Soul: Living with Alzheimer’s and Other Dementias.

A big shout out to Shawn Ireland for her role in this year’s Central Ohio Walk to End Alzheimer’s; Shawn was our honorary chair!

To watch the segment, click here.

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Mad as Hell: Creating a Movement

28 Sunday Sep 2014

Posted by Ann Napoletan in Advocacy and Awareness, Facts & Figures, USAgainstAlzheimer's, Washington, World ALZ Month

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Tags

alzheimers, alzheimers research, dementia, usagainstalzheimers, womenagainstalzheimers, world alzheimers month

PLEASE contact your representatives… please. If you aren’t sure who or how, click here to find your House representative and here to find your Senate representatives.

We MUST let Washington know that we’re mad as hell and need their support NOW.

When I was in DC at the WomenAgainstAlzheimer’s Out of the Shadows Summit earlier in the month, we heard research leaders Reisa Sperling (Brigham and Women’s, Harvard), Kate Zhong (Cleveland Clinic), and others, talking about the great work being done in labs across the country. Hope is there, we just need funding to match that of the other leading causes of death: cancer, heart disease, and HIV/AIDS.

Don’t think your voice doesn’t count. You + your neighbor + his brother + his co-worker + her neighbor + so on and so on and so on. It’s time to make this a movement, just like the movement to cure cancer and HIV/AIDS. Time is of the essence.

What do we want them to do?

  • Increase funding for the National Institute on Aging by at least $100 million from the fiscal year 2014 level.
  • Recognize the immense contributions of family caregivers by enacting the Social Security Caregiver Credit Act.
  • Honor Legendary Coach and Alzheimer’s champion Pat Summitt with the Congressional Gold Medal.

200 vs 465

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The Long and Winding Road

Marilyn, BA (before Alzheimer's)

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