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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Alzheimers.net

Weekly Roundup

27 Saturday Jul 2013

Posted by Ann Napoletan in A Place for Mom, Advocacy and Awareness, Alzheimers.net, Blogging, Care Options, Caregivers, Caregivers.com, Events, Expectations, Family, Films, Finding a Facility, Grieving, Helpful Resources, Saying Goodbye, Signs and Symptoms, Tips

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animated_cowboy-cartoon

I honestly can’t believe it’s Friday again, and even more incredible is the fact that August 1st is just a few days away! Sometimes, I wish life would slow down just a bit.

Promotion for our Columbus screening of Angel’s Perch continues, and with 10 days left before our deadline, we’ve got 21 tickets left to go. I’m really hoping they’ll be reserved by the middle of next week… fingers are crossed. If you’re in the area and would like to join us for what promises to be a very special evening, you can reserve tickets here.

What’s Happening on ALZ.net?

Alzheimers.net is currently undergoing some exciting changes, so there was no post this week. However, stay tuned for an interesting piece on Alzheimer’s and turmeric coming soon. I learned a lot doing the research for this one and joke that now I’ll be drinking turmeric tea daily and following it with a coconut oil chaser…  (((smile)))

This Week on Caregivers

Did you know there are various conditions that can cause excessive confusion in the elderly? Not only can they exacerbate symptoms in dementia patients, but they can also wreak havoc on the mental status of individuals with no previous diagnosis. Learn about several of these issues and find out what signs to be on the lookout for in 3 Causes of Sudden Confusion in the Elderly.

Mothers Day_022On Thursday, I discussed the challenges of parenting your parent, providing tips on navigating the often rough and uncertain waters that come along with life’s ultimate role reversal. It’s not easy, but the sooner you begin to face the issues head on, the better. Preparation is so important. Read more in Parenting Your Parent: 6 Things I’ve Lived and Learned.

VoiceQuilt

Earlier this week, VoiceQuilt posted Memorial Ideas: Breaking Away From Tradition, a piece I recently wrote about creating a memorial befitting the person being honored. It’s a very personal decision, and different for every family, but the underlying point is, there is no “right” or “wrong.” ♥

Other Tidbits of Interest

I see so many articles each week, but today I want to share a few of the best from the past 7 days. There’s just such a wealth of wonderful information out there.

Martha Stettinius (Inside Dementia) featured a guest post by Ram Meyyappan, an expert on Social Security benefits. This piece does a great job of demystifying some of the benefits and eligibility requirements for dementia patients. Take a look at Dementia and Social Security Disability Benefits.

ghpThis week, NPR featured an enlightening and very relevant segment on The Green House Project, and it’s well worth listening to the clip. If you aren’t familiar with the concept, I guarantee after this 5-minute introduction, you’ll be sold on the unique alternative to traditional assisted living and skilled nursing.

Last but not least, Jeff Anderson from A Place for Mom did an informative article on how to check for assisted living violations. In 10 States that Make it Easy to Check Assisted Living Violations, he tells us what states do the best job of making sure this data is appropriately detailed, easily accessible, and updated frequently. If there’s one thing I’ve learned, it’s the importance of thorough due diligence; never choose a facility based simply on a tour of the building. Appearances are not necessarily what they seem and it’s critically important to research audit histories, make surprise visits, and speak to family members of current and, if possible, past, residents.

That’s about it for now – I hope you and yours have a lovely weekend and beautiful last few days of July. Until next time, carpe diem…

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Week in Review …

22 Monday Jul 2013

Posted by Ann Napoletan in Advocacy and Awareness, Alzheimers.net, Blogging, Caregivers, Caregivers.com, Eason House, Events, Films, Inspiration, Life After Caregiving, Mom, Ruminations

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sunshineLast week was a busy one.. the heat has hit Central Ohio full force and we have been sweltering! It took awhile, but it appears as though summer is here.

Monday (July 15) marked 7 months since my dear mom went to Heaven and I’ve been thinking about her so much. On Thursday, driving home from work, I had one of those moments where for a split second it didn’t seem possible that she’s really gone. Those tend to be followed by what feels like a very hard punch in the stomach… I wonder if that will go on forever…

One of the ladies at Eason House passed away suddenly last week. She was 93, but you would have never guessed it from looking at her! I always told her what beautiful skin she had and she would just beam and say, “I’m 90 years old, you know…” She will be missed, but it makes my heart smile to think of her now reunited with her beloved husband. I imagine Dr. E. was waiting at Heaven’s gates and greeted his wife with open arms…

Hospital Wristband Project

Monday’s Caregivers post was on Gary LeBlanc’s Alzheimer’s/Dementia Hospital Wristband Project. Gary is doing extraordinary work in Florida and provided an update toward the end of the week. Seems as though the pilot is a go for September 3rd and things are falling into place (with a ton of hard work, no doubt).

It is official. We have a starting date. Starting September 3rd, all dementia patients will have the Purple Angel Logo attached to their wristbands at Brooksville Regional Hospital. Training for all hospital staff in Dementia Care will be held in 8 sessions, 4 mornings and 4 evenings in order to cover all hospital personal staring around Aug. 18th. (Still fine tuning the training dates.) The training will be done by the Alzheimer’s Association Gulf Coast Chapter.

Keep up the fantastic work, Gary!

Life After Caregiving

Elaine Mansfield and Martha Stettinius were kind enough to allow me to interview them for Thursday’s Caregivers piece. I had been reflecting on how the past 9 years truly changed who I am and wanted to write about it. Having been caregivers themselves, Elaine and Martha provided insightful thoughts, discussing how their own journeys resulted in personal transformation.

Angel’s Perch

I did a post about the recently released movie Angel’s Perch on Alzheimers.net this week. This indie film sets aside the statistics we so commonly hear in favor of putting a face on the disease. Featuring the stunning backdrop and history of lovely Cass, West Virginia, it promises to have something for everyone.

I’m still hard at work promoting a Columbus screening, which is scheduled for 8/14 at the Easton AMC 30. The catch? We’re required to have 75 seats reserved for purchase by 8/7. We’re almost halfway there with about two weeks left to go. If you’re in the area and would like to join us for this special evening, please reserve your tickets today!

Until next time, here’s wishing everyone a peaceful week. Keep cool and carry on!

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Week in Review….

13 Saturday Jul 2013

Posted by Ann Napoletan in Advocacy and Awareness, Alzheimers.net, Blogging, Books, Caregivers.com, Children and ALZ, Events, Films, Helpful Resources, Products, Sandwich Generation, Tips

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week-in-review

I’m always puzzled as to how a week can drag on forever and fly by at the same time. It was one of those weeks for me and I’m mentally exhausted.

Angel’s Perch

Obviously, the best news of the week is that the Columbus screening of Angel’s Perch is now SET for Aug 14 at AMC Easton… with one caveat – we must sell 75 tickets by Aug 7 or the event will be canceled. Please help us make this happen; plan to come out and see this film that’s getting great reviews! Get your tickets now –> Reserve Tickets

This Week on Caregivers

Did you know July is National Sandwich Generation Month? There’s no question the number of people raising children while simultaneously caring for aging parents is on the increase. Monday on Caregivers, I did a piece entitled 9 Sanity Saving Resources for Sandwich Generation Month sharing some wonderful websites and books that might make the journey a little easier.

On Wednesday, I looked at four different products aimed at helping your loved one maintain a bit of independence. They may rely on you for more and more each day, but each little task they can do for themselves gives them a sense of purpose and satisfaction. 4 Products to Help With Maintaining Independence introduces a fantastic med box, complete with talking reminders, an easy-to-operate television remote control, a phone designed for the elderly and memory impaired, and a clock/calendar that won’t leave them asking “Is it dinnertime yet?” every hour on the hour. (((smile)))

A Great Book to Help Kids Understand ALZ

Finally, this week’s Alzheimer.net post is a review of Max Wallack’s fantastic new children’s book, Why Did Grandma Put Her Underwear in the Refrigerator?  Beautifully written and drawing on Max’s personal experience growing up with his beloved great grandmother who had ALZ, it’s a book we can all benefit from. Grab your copy today – I highly recommend it!

 

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Marilyn, BA (before Alzheimer's)

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