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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Celebrities

Still Alice: Breaking Through Old Stereotypes

28 Saturday Feb 2015

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Books, Celebrities, Early Onset, Face of Alzheimer's, Films, Helpful Resources, Inspiration

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alzheimers, alzheimers awareness, alzheimers stereotypes, dementia, julianne moore, still alice, younger onset alzheimers

This past week, I had the pleasure of attending a screening of Still Alice followed by a panel discussion organized by our local chapter of the Alzheimer’s Association. I’d seen the film the first day of the wide release, but watching it for the second time was a completely different experience.

The event was sold out, which in and of itself felt like a victory. Just being in that space with so many people united in the dream of a world without Alzheimer’s was overwhelming.

Julianne Moore’s portrayal of Alice is brilliant, no doubt largely due to the careful research she did for the part. Last month, Sandy Oltz, Moore’s personal consultant and inspiration for the film, spoke at the Alzheimer’s Association’s Leadership Summit in Orlando. Sandy was diagnosed with younger onset at age 47. In many ways, she is the real life Alice; educated, accomplished, strong, beautiful, a wife and mother, and living with Alzheimer’s.

 Please do not think I am suffering. I am not suffering. I am struggling, struggling to be a part of things, to stay connected to who I once was. So, ‘live in the moment’ I tell myself. It’s really all I can do, live in the moment.

 

Sandy Oltz

Whether or not to see Still Alice, or when to see the movie and in what setting, is a very personal decision. I had the book on my Kindle for a couple of years before I worked up the courage to read it, and then it was only because I was going to be hearing Lisa Genova speak.

If you have lived the reality of Alzheimer’s disease, this film will be difficult to watch. It will inevitably remind you of moments with your own loved one: moments of anger, frustration, and fear. But it will also bring forth memories of a love the depth of which cannot be described. A love that goes far beyond words into a realm we never knew existed.

Still Alice has the power to change the way the world views Alzheimer’s. This movie represents a breakthrough. Alice is far from the stereotypical Alzheimer’s patient, and the message is simple: Alice Howland could be any of us.

There but for the grace of God go I.

We can only hope that as this powerful film works its way into the mainstream, people are inspired to join the movement to #ENDALZ. Because at the end of the day, it’s really just about love…

 

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Glen Campbell: I’ll Be Me

14 Saturday Feb 2015

Posted by Ann Napoletan in Advocacy and Awareness, Celebrities, Films

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alzheimers, alzheimers movie, celebrities with alzheimers, dementia, glen campbell, i'll be me

This week, I saw both I’ll Be Me and Still Alice. They were very different, but each was spectacular in its own unique way.

I think the Glen Campbell movie was the more difficult for me to watch for several reasons. The fact that it’s a true story makes it especially poignant, and for people of my generation it’s shocking to see an icon like Glen Campbell declining in this manner. As expected, there were also moments that reminded me very much of my mom.

I’ll Be Me is a documentary about Glen Campbell’s 2011-2012 farewell tour. The family decided to move forward with the tour despite the Alzheimer’s diagnosis Glen had received. Those closest to him didn’t expect the family to be on the road for more than five weeks; however, the superstar surprised everyone. The tour played more than 150 shows over the period of a year and a half.

And Glen was extraordinary.

Seeing clips from the height of Glen’s popularity, hearing those old hits like Rhinestone Cowboy, Southern Nights, and Wichita Lineman, and watching him play the guitar like nobody’s business on this tour resulted in many smiles from audience members. While his behavior became more erratic and he began struggling with simple tasks, the minute he picked up the guitar, it was pure magic. It was as though he had been transported back to the ’70’s.

Striking a Perfect Balance

Producer Trevor Albert and producer/director James Keach really highlighted the fact that Glen maintained his wry sense of humor and fun loving demeanor even as the disease chipped away at his mind. The lesson for those who are unfamiliar with Alzheimer’s is a simple yet vitally important one. People living with dementia do change drastically but they never leave us. They’re always very much “in there” – we may just need to venture into their world when they are having trouble navigating ours.

I was happy to see they did include a couple of very raw scenes demonstrating behavioral issues; anger, agitation, anxiety – all the things that the disease eventually brings. While unpleasant to watch, in order to paint an accurate picture, they must be shared.

Overall, the filmmakers found just the right balance, telling the story in an honest manner, sharing both the ups and the downs. In one scene, Glen and his wife Kim were at the Mayo Clinic, and the neurologist asked the questions we’ve all heard if we’ve accompanied a loved one with dementia to an appointment.

What year is it? Where are we? Can you repeat back the words I gave you a few minutes ago? Reminding me very much of my mom, Glen used humor to skirt around the fact that he didn’t know the answers. The expression on Kim’s face said it all and brought back vivid memories of my own personal experience.

Honor or Exploit?

Some have questioned whether I’ll Be Me exploited Glen once his condition began to deteriorate. I don’t think so. Throughout the film, it was quite evident that Glen was in his element. The minute he took the stage in front of his adoring fans, his heart overflowed with joy, and the moments shared with his crew, friends, and family offstage were equally heartwarming.

I found Glen’s relationship with daughter, Ashley, especially touching and tender. Their rendition of Dueling Banjos was astounding, and when they finished, everyone watching the film broke into applause – so caught up in the moment that it felt like we were watching the performance live.

I’ll Be Me is a beautiful and lasting way to honor Glen Campbell’s life and legacy. The affection and devotion surrounding the Campbell family shone brightly through the entire film and while there were plenty of tears, I think we all left that evening with our hearts full of love and hope.

I highly recommend seeing the film and pray it brings increased awareness to this horrific disease.

Click here to see when I’ll Be Me will be coming to your area. If you’ve seen the film, I’d love to hear your comments! And stay tuned as Glen’s song I’m Not Gonna Miss You is up for an Oscar later this month. A few weeks ago, it took the Grammy for best country song!

 

__
A very special thank you to National Church Residences for sponsoring this event in Columbus, Ohio.

Postscript: This lovely article by Greg O’Brien, himself diagnosed with younger onset Alzheimer’s, appeared on Psychology Today’s blog in October 2014.

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Film Review: Angel’s Perch

31 Saturday Aug 2013

Posted by Ann Napoletan in Advocacy and Awareness, Celebrities, Events, Films, Humor, Inspiration

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alzheimers, alzheimers awareness, Angel's Perch, dementia

ap3Part 1 of 2. Stop back in the coming days for an interview with talented filmmakers J.T. Arbogast and Kimberly Dilts.

I’ve always said that caring for a loved one who has Alzheimer’s is like joining a club you never wanted to be a part of. It’s truly an experience that can only be understood by those who have been through it and witnessed its wrath.

Independent Filmmaking At Its Finest

Obviously, my curiosity was piqued immediately when I heard about Angel’s Perch, an independent film released earlier this summer. The filmmaker, J.T. Arbogast, lost his grandmother to Alzheimer’s in 2008, so it was logical that he would be more than qualified to make a movie on the subject.  …And was he ever!!

Angel's Perch - ColumbusWe hosted a sold out screening of Angel’s Perch here in Columbus and received a myriad of rave reviews. Sometimes even silence speaks volumes, and that was the case when at the end of the movie as the credits rolled, not a soul moved. You could have heard a pin drop in the theater – it was as though we all needed a few moments to absorb the tremendous story we had just seen played out on the giant screen before us. I really don’t have words to describe how I felt as I was leaving the event.

A Picture Painted Through Real Life Experience

jackThe story begins with Jack (played by Arbogast) on the verge of winning a potentially career-changing contract for his architectural firm. Like so many of us, one minute, life is normal – and then the phone rings, and in a split second the world is turned upside down.

His grandmother had just been found wandering, and her long-time caregiver, Betsy, was calling to explain what had happened. The incident sparked increased worries that living alone was beginning to compromise Polly’s safety. Understandably very concerned, in the midst of preparing for an important client presentation, Jack packed a bag, jumped in the car, and drove to West Virginia.

grandmakaneOne of the most poignant scenes in the film takes place when Arbogast’s character walks into his Polly’s house, sets his things down, and quietly gazes around the living room. Photographs and reminders of happier days; memories of special times spent with his grandmother over the years whirl through his mind.

I knew that feeling, as I had experienced similar moments in my own mother’s house. Later, I learned much of the filming, including that scene, actually took place in Arbogast’s grandmother’s house. Is it any wonder Jack’s experience felt so real?

From Historic Logging Town to Movie Set

cassmapThe film is set in Cass, West Virginia, a tiny spec of a town that was home to a booming paper mill in the early 1900’s. After the industry’s collapse, Arbogast’s grandparents had a hand in saving the town by convincing the powers-that-be to make it part of the state park system. In 1961, it became Cass Scenic Railroad State Park.

The same steam engine used to transport logs still carries many visitors on a scenic ride that combines a bit of history with some absolutely stunning views. Ironically, we had taken my mom to Cass for an autumn ride on the railroad several years before Alzheimer’s began to slowly wage war on her mind. Looking back, such a fond memory.

I don’t want to give away too much because you must find a way to see Angel’s Perch yourself. However, I can promise you a beautifully tender story peppered with moments of humor that will strike a chord with anyone who has traveled the Alzheimer’s journey. Only a member of our special “club” could make a movie so on point; there were scenes that could have literally been plucked right out of my life.

Flawless Casting

JoyceThe cast is phenomenal. Joyce Van Patten plays Polly so perfectly that you really forget she’s acting; I don’t know how she prepared for the role, but her portrayal is brilliant. Likewise, Arbogast’s Jack is authentic and believable – watching him deal with the emotional rollercoaster ride that comes with the disease was at times like looking in the mirror.

Ellen Crawford played Polly’s long-time caregiver and family friend beautifully. Her character, Betsy, clearly wrestled with her own emotions as she watched the Alzheimer’s progress, just as I watched my mom’s caregivers struggle with what was happening to the woman they had come to love.

Rounding out the cast were Ashley Jones as Jack’s adorable “girl-next-door” childhood friend, Ally Walker, who played a hilarious Judy – the resident beautician and town busybody and gossip, Jesse Sharp as Jack’s ambitious business partner, Kevin, and Elisabeth Hower as Jack’s wife, Sarah. Last but not least, two of Cass’ own made their big screen debuts in the film!

Local Talent Shines

DelbertDoc Snyder was portrayed by Green Bank resident, Mike Holstine, and Homer Hunter, of Stony Bottom, played Delbert, the endearing postman who was apparently rather popular with the ladies. Arbogast hit the nail on the head, saying Hunter “just about steals the film way from everyone else… he’d never acted a day in his life, but you sure wouldn’t have known it by his performance.” There was no question that the audience fell in love with him!

What is Tugg?

Arbogast and his wife, producer Kimberly Dilts, released the film through a relatively new distribution channel that allows people just like you and I to bring the film to our own local theaters. Kim said the grassroots method of getting the film in theaters “requires much more elbow grease, but it’s very gratifying.”

tuggIf you’re interested in hosting a local screening, visit Tugg.com to learn more. All of the folks I dealt with there were extremely encouraging and helpful; my primary promotional tool was social media, and as mentioned, we sold all of the seats! I definitely recommend giving it a go; through the experience I met some lovely people and we were able to raise almost $300 for our local chapter of the Alzheimer’s Association.

Made With Love and It Shows

APgenericIn closing, let me say that from the cast to the cinematography to the story itself, this film is a winner.  Made on a shoestring budget that began with a Kickstarter campaign, in my opinion, Angel’s Perch would easily stand up alongside any film on the festival circuit. I hope it reaches each and every person reading this post; in just 90 short minutes, it will make you laugh, cry, and feel every emotion in between. This movie was made with love, and I promise it will truly touch your heart.

_____

J.T. Arbogast is a Los Angeles-based writer, actor, and producer with a number of stage, film, and television credits. Prior to his arrival in LA, he spent four years as the Associate Director of the critically acclaimed National Comedy Theatre in New York, of which he was also an original cast member.

Kimberly Dilts is a producing artist who works as an actor, director, choreographer, writer, and teacher. She has a number of stage and television credits, and enjoys voicing Anime. She also served as Director of Operations for The Haitian Education and Leadership Program for several years.

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