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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Eason House

Week in Review …

22 Monday Jul 2013

Posted by Ann Napoletan in Advocacy and Awareness, Alzheimers.net, Blogging, Caregivers, Caregivers.com, Eason House, Events, Films, Inspiration, Life After Caregiving, Mom, Ruminations

≈ 1 Comment

sunshineLast week was a busy one.. the heat has hit Central Ohio full force and we have been sweltering! It took awhile, but it appears as though summer is here.

Monday (July 15) marked 7 months since my dear mom went to Heaven and I’ve been thinking about her so much. On Thursday, driving home from work, I had one of those moments where for a split second it didn’t seem possible that she’s really gone. Those tend to be followed by what feels like a very hard punch in the stomach… I wonder if that will go on forever…

One of the ladies at Eason House passed away suddenly last week. She was 93, but you would have never guessed it from looking at her! I always told her what beautiful skin she had and she would just beam and say, “I’m 90 years old, you know…” She will be missed, but it makes my heart smile to think of her now reunited with her beloved husband. I imagine Dr. E. was waiting at Heaven’s gates and greeted his wife with open arms…

Hospital Wristband Project

Monday’s Caregivers post was on Gary LeBlanc’s Alzheimer’s/Dementia Hospital Wristband Project. Gary is doing extraordinary work in Florida and provided an update toward the end of the week. Seems as though the pilot is a go for September 3rd and things are falling into place (with a ton of hard work, no doubt).

It is official. We have a starting date. Starting September 3rd, all dementia patients will have the Purple Angel Logo attached to their wristbands at Brooksville Regional Hospital. Training for all hospital staff in Dementia Care will be held in 8 sessions, 4 mornings and 4 evenings in order to cover all hospital personal staring around Aug. 18th. (Still fine tuning the training dates.) The training will be done by the Alzheimer’s Association Gulf Coast Chapter.

Keep up the fantastic work, Gary!

Life After Caregiving

Elaine Mansfield and Martha Stettinius were kind enough to allow me to interview them for Thursday’s Caregivers piece. I had been reflecting on how the past 9 years truly changed who I am and wanted to write about it. Having been caregivers themselves, Elaine and Martha provided insightful thoughts, discussing how their own journeys resulted in personal transformation.

Angel’s Perch

I did a post about the recently released movie Angel’s Perch on Alzheimers.net this week. This indie film sets aside the statistics we so commonly hear in favor of putting a face on the disease. Featuring the stunning backdrop and history of lovely Cass, West Virginia, it promises to have something for everyone.

I’m still hard at work promoting a Columbus screening, which is scheduled for 8/14 at the Easton AMC 30. The catch? We’re required to have 75 seats reserved for purchase by 8/7. We’re almost halfway there with about two weeks left to go. If you’re in the area and would like to join us for this special evening, please reserve your tickets today!

Until next time, here’s wishing everyone a peaceful week. Keep cool and carry on!

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A Visit to Eason House

24 Friday May 2013

Posted by Ann Napoletan in Alzheimers.net, Blogging, Eason House, Grieving, Life After Caregiving, Mom, Saying Goodbye

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kermitI stopped by Eason House yesterday for a visit. I don’t think I’ll ever get used to how quiet the place is without Mom there; two of the ladies were sleeping, another was resting in her chair, and the fourth disappeared to her room shortly after I arrived. My mom’s room still sits empty, and I’m not sure if that’s good or bad. It will definitely be strange to see someone else take that space, but maybe it will be a positive change – a sign that life carries on after loss.

While I was there, cute little Nico came in – Mom loved him so much. No matter what kind of day she was having, when she saw that adorable face, she lit up and truly came to life. Well, now almost six months later, Nico is walking – he’s no longer a baby. When I saw him, my mind immediately went to Mom and how she would have been absolutely crazy about those bright, inquisitive toddler eyes and chunky cherub cheeks. Time marches on, doesn’t it? I guess the one constant we can count on in life is change…

That being said… life after Alzheimer’s isn’t for the faint of heart. As I write in my latest Alzheimers.net post, After Alzheimer’s: Facing the Grief, I think I miss Mom more with each passing day… I wonder when the sense of loss and sadness will begin to ease.

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Dear Mom…

09 Thursday May 2013

Posted by Ann Napoletan in Blogging, Caregivers.com, Eason House, Grieving, Life After Caregiving, Mom, Mother's Day, Ruminations, Saying Goodbye, Support system

≈ 5 Comments

Marilyn & MarilynOh sweet mother of mine, I am very thankful to know that you are finally whole again, free from the fear, pain, and sadness that hideous disease caused you. You are now in a place far more perfect than any of us can even begin to imagine. And I know you remain with me in spirit. But, damn, do I miss you. I would give anything to hold your hand again…or hear you say “I love you” while wearing that sweet expression on your face. You know the one, right? When I close my eyes, I can still see that lovely image in my mind.

Sunday is Mother’s Day, and this week has been so much harder than I imagined. I expected it to be difficult, but fair to say that even I underestimated the sadness and sense of loss it would bring. I can’t focus, I can’t think, and I can’t seem to stop crying. Literally. Once it starts, it simply will.not.stop. I feel like I’ve complete regressed… any progress I made in dealing with the grief – now gone. It’s as though it’s December 15th again rather than almost five months later.

Yesterday, I walked past a Mother’s Day card display in the store at work, and when I got back to my desk, I had a complete melt down. The tears wouldn’t stop. On the way home from the office, I picked up not one, but TWO pints of Jeni’s ice cream! I think you would have approved!! Oh you would have LOVED Jeni’s… would you believe it’s $10/pint? Crazy right?? But as we both know, there are moments when such a splurge is not only called for – it’s worth every penny and then some!  🙂

As I write this, I’m giving myself permission to have an all out, no holds barred, no apologies sob fest… until there are no more tears left. I think it might be awhile. I’m taking tomorrow off so that I can cry in the privacy of my own living room, dammit. I’m so exhausted from trying to hold it together, and I know people mean well, but I hate when they ask what’s wrong. It just makes me cry even more…

That faceI’ll be thinking of you Sunday. I contemplated spending a couple of hours with the ladies at Eason House, but as the day draws nearer, I’m not sure I can do it. Not this year. Maybe next. I did send them each a Mother’s Day card, though. They won’t  have a clue who “Ann” is, but hopefully, it’ll make them smile in the moment they open the envelopes. Boy, that place just isn’t the same without you…

You are so missed by so many people. John H. stopped by my desk yesterday to say hi and give me a great big hug, and I received the most beautiful card from Emily today. You sure knew how to pick ’em… those are two wonderful people. You guys had some great times at the Training Center, didn’t you!? Back in January at your Celebration of Life, John told the story about the time you took the vacuum cleaner over to help him get ready for a visit from his mom… 20+ years later, that story is still hilarious! 🙂

Her Spirit I hope you, Aunt Shirley, Aunt Helen, and Grandma McCormick have a beautiful Mother’s Day – I smile to think of the four of you laughing together and enjoying a spread of food fit for an army! You might not remember this picture, but it was taken back when you were just starting to get sick… completely coincidental that the boa you’re wearing is purple… I adore this photo. It embodies your spirit so perfectly… I imagine this is just what you’ll look like on Sunday as you celebrate with three of your favorite ladies.

I love you.

Ann

PS… You were the inspiration for today’s Caregivers post. I wrote this earlier in the week…  What Is Your Mother’s Legacy?

 

 

 

 

 

 

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Marilyn, BA (before Alzheimer's)

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