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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Grieving

And So It Begins… Mother’s Day

28 Monday Apr 2014

Posted by Ann Napoletan in Grieving, Life After Caregiving, Mom, Mother's Day, Ruminations, The Early Years

≈ 2 Comments

Tags

caregiver grief

April showers bring May flowers, and May flowers bring… Mother’s Day.

Did stores always have so many Mother’s Day displays or am I just noticing it now because my own mother isn’t here? I feel as though every time I turn my head, I’m faced with a sea of pink and lavender. Cards embellished with pretty flowers and sweet sentiments; signs luring shoppers with promises of “the perfect Mother’s Day gift” or the best way to “show Mom how much you love her!”

More than once over the past week, I’ve come upon a display of Mother’s Day cards, and unconsciously thought, “Oh, I need to get Mom a card.” It only lasts for a fraction of a second before I realize I don’t have a reason to buy a card, and it’s followed by the same empty feeling each time.

Mother’s Day 2011

Earlier tonight, I was reading something I wrote on Mother’s Day 2010:

I think mom really read and understood her card – I made sure to get one with a sweet, yet very simple, message. When she finished she looked at me and said, “Awwwww, that’s so nice.” It was, as they say, “a moment of joy.”

Boy, what I wouldn’t give to relive that moment again…

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Mad as Hell – at Alzheimer’s

24 Thursday Apr 2014

Posted by Ann Napoletan in Advocacy and Awareness, Face of Alzheimer's, Grieving, Life After Caregiving, Mom, Ruminations

≈ 4 Comments

Tags

alzheimers, Alzheimers advocacy, alzheimers awareness, dementia

Tonight, I don’t feel like beating around the proverbial bush – let’s just get right to it.

I’m MAD. Pissed. Irate. Infuriated.

Angry as hell that I don’t have my mom. Mad that when I have a day like I had today I can’t pick up the phone and talk to her about it. Furious that Alzheimer’s took her away just when she was supposed to be starting to enjoy the retirement she worked so hard for.

I know I’m not the only one who has ever felt this way, but at the moment it doesn’t matter. I want to shout from the rooftops. I want to shake the people who have the power, yet don’t do anything to change this situation. I want the world to know what this disease does and that it’s so much more than memory loss. I want them to realize this is not just a disease of the elderly; people are diagnosed in their 40’s and 50’s – sometimes even younger. I want the masses to be well aware that Alzheimer’s has NO SURVIVORS.

 

Mom would be 77-years-old if she were here today. She lived until two months past her 76th birthday. When she died, it had been nearly a decade since we’d been able to travel together and almost that long since we could sit and have a normal conversation. We missed out on all of those precious years together. At 77, she should have been able to travel to Napa with us a couple of weeks ago. Oh how she would have loved that trip!

My mom’s body was healthy and strong; had it not been for Alzheimer’s, I have no doubt she would be here enjoying an active retirement just like so many of her friends. And, right now I’d be on the phone telling her about my day while she reminded me that everything happens for a reason even if we don’t know what it is….

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Alzheimer’s: Accepting a New Reality

15 Tuesday Apr 2014

Posted by Ann Napoletan in Caregivers, Expectations, Grieving, Guilt and Regrets, Helpful Resources, Inspiration, Life After Caregiving, Mom, Quotes, Ruminations, Saying Goodbye, The Early Years

≈ 1 Comment

Tags

alzheimers, alzheimers acceptance, alzheimers denial, dementia

I read a lot about Alzheimer’s and dementia. A lot. Still, every now and then I come across something that grabs hold of me and won’t let go, because it reads exactly – and I mean exactly – like my own experience. Despite the fact that I tell people all the time, “we’re in this together” and “what you’re feeling is normal,” I sometimes forget those things apply to me, too!

Tonight, I read one of the most poignant essays I’ve ever seen discussing a topic that’s very close to my heart. In fact, it’s the subject of my contribution (Learning Acceptance) to Chicken Soup for the Soul: Living With Alzheimer’s and Other Dementias.

In his piece for Maria Shriver’s blog, Dr. Daniel C. Potts writes about reaching a point of acceptance – realizing that your loved one as you once knew them is gone, but their core remains very much intact. Always. Even dementia can’t strip them of their essence. It simply cannot.  Continue reading →

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Marilyn, BA (before Alzheimer's)

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