• Home
  • Helpful Resources
  • Reading List
  • Recommended Blogs
  • Marilyn’s Legacy: A World Without Alzheimer’s
  • About Me
  • Contact Me

The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: dementia

Alzheimer’s Blues

16 Monday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Events, Humor, Inspiration

≈ 3 Comments

Tags

alzheimer's blues, alzheimers, caregiver stories, dementia

alz-bluesAlzheimer’s Blues. Sounds almost like a song title, doesn’t it? Well, guess what…. not only is it the title of a song, but also of a one-woman show conceived by and starring Erica Herd.

The stage show, co-written by Herd and L.E. Swenson, premiered at the Stage Left Studio in NYC this past summer under the title The Year of Dead Cats. Several rewrites and additional music prompted the new title, which carries with it a touch of both humor and irony.

From Acting to Alzheimer’s

young-katherine-lindAlzheimer’s Blues centers on the story of Herd’s mother, Katherine Lind, who was a sought after New York actress in the 1950s, ‘60s, and ‘70s. Lind had it all – talent, beauty, and rave reviews for her off-Broadway work which included The Diary of Anne Frank, The Seven Year Itch, and I Am A Camera. She was also a touring member of the national and regional casts of shows such as A Little Night Music, Hamlet, The Glass Menagerie, King of Hearts, and A Midsummer Night’s Dream.

And then came schizophrenia, followed by Alzheimer’s in 2010… Yes, Alzheimer’s – that damn dreaded disease that doesn’t care about your background, status, or calling. Stunning New York actress or small town janitor – dementia and Alzheimer’s level the playing field like few other things in life.

Laughter is the Best Medicine

The show addresses many of the challenges Alzheimer’s and dementia caregivers face on a daily basis. In a May 2013 interview for nytheater.com, Herd explained that she chose humor as a path toward healing.

erica“I take a comedic spin on it, try to find a way to heal the pain with laughter. It started as a blog on Open Salon while I was in the throes of dealing with mom’s illness in 2011. And with the help of my director and co-author, we transformed it into a play,” says the actor/playwright.

In the video below, she performs the title song, Alzheimer’s Blues. As I listened to the lyrics – the poignant story of a daughter and her mother – paired with music by blues legend T-Bone Walker, I wasn’t sure whether I should laugh or cry…

Stay tuned for more about Erica and this fascinating one-woman show. Do you have a specific question for her? If so, post a comment below and I’ll incorporate your inquiry into our upcoming Q&A.

For tickets, click here.

– Photos courtesy of Alzheimer’s Blues / Erica Herd

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

Angel’s Perch: Behind the Scenes

06 Friday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, Films, Inspiration, World ALZ Month

≈ Leave a comment

Tags

alzheimers, alzheimers awareness, Angel's Perch, dementia

In my recent review of Angel’s Perch, I promised an interview with the film’s producers, J.T. Arbogast and Kimberly Dilts (Arbogast also wrote and starred in the movie).

Shortly after signing on to host a Tugg screening, I received my first email from Kim and knew instantly I was dealing with two very special people. That first impression was right on point; I can’t say enough good things about this talented couple!

Inquiring Minds Want To Know…

After reading everything I could find on Angel’s Perch, I wrote J.T. and Kim asking if they would be willing to answer a few questions. I hope the result will help give you a better feel for how the idea was born and what it took to bring the story to life. 

Q: When did you know you wanted to make the movie, and was there any single thing that brought you to that realization? 

JT: I had always known that I was going to try to do something to shine a light on this little town of Cass that my family calls “home.”  Although I grew up in Pennsylvania, a lot of the memories and events that helped to define who I am today are found in those West Virginia mountains. My parents grew up and met in high school there, most of my extended family still lives there and, in 1960 when the mill shut down and the lumber industry left, my grandparents (along with some other locals) worked tirelessly to convince the state to purchase the town and turn it into a state park.  From that point on, no matter where they were, whether it was 30 miles or 3,000 miles away from home, they were inviting people to come to Cass and ride the train.  They were so proud of this place that they wanted the world to see it.

After my grandmother’s passing in 2008 and I began to reflect on her battle with Alzheimer’s disease and the toll it took on our family, a story started kicking around in my head and it wouldn’t let me go.  I started writing in late 2009 with no real plans to make a movie, only knowing that I needed to get it out on paper.  I shared it with Kim in August of 2010, thinking that maybe this was more than just an exercise and knowing that she would be honest.

KD:  Ultimately, my decision to make the film came around to two things: 1) I love my husband and knew this was a dream of his.  2) I wanted him to have the opportunity to tell this very personal story and to create something that might open doors for us in the future.  As a performer, you are constantly at the mercy of the telephone—always waiting for it to ring.  When you make your own work, there’s an ownership and agency to the process that you don’t get when you’re just waiting, waiting, waiting for someone to hire you—for someone to tell you you’re good enough to do the thing you love.

Q: What was your family’s reaction to the idea?

JT: When we made the decision to make the film, I sent my Mom the script to read and then, when we were home for the holiday, we talked about it.  She cried when she read it, but it was a “good” cry, if that makes sense.

I knew it would be hard for them.  Even though the story is fictional, it’s hard not to see bits of my grandmother all over this movie…little things that only the family would know.  But, they have all been incredibly supportive.

Q: What made you go with grassroots distribution using Tugg as opposed to other options? Was Tugg part of the original vision?

tuggKD: Tugg didn’t actually exist when we started this process! The incredible thing about being a filmmaker at this point in time is that it’s a little bit like the Wild Wild West.  The things we used to understand about distributing a film are no longer true, and the technology and tools are rapidly evolving.  We originally thought, like most filmmakers, that we would go the festival route.  But when we took a hard look at what a festival release and subsequent distribution deal would bring in, we realized we wouldn’t likely be able to recoup even our tiny production budget.

Right around that time, we discovered Tugg, and that changed everything.  It showed us that by self-distributing, we could actually have a wider release in theatres than we could have with a distribution deal.  Like many other filmmakers, we discovered that we had a better chance of breaking even (and maybe making a little money), by self-distributing—going directly to our audience without a middleman.  It requires much more elbow grease, but it’s very gratifying. 

Q: Initial funding was raised through Kickstarter. What was the elapsed time from the launch of your Kickstarter project to completion of the film?

JT: We made the decision to make the film in August of 2010 and spent most of the fall/winter getting our legal paperwork in order, finding our director, and getting all the proverbial “ducks in a row” to start the project on the right foot. We launched our Kickstarter campaign in March of 2011 and we wrapped post-production (final credits locked and ready for premiere) at the beginning of May 2013.

ap5Q: What “roles” did Cass residents play in the making of the film, aside from extras?

JT: Well, two of our main cast members are Pocahontas county locals! Mike Holstine, who plays Doc. Snyder in the film, is actually the business manager at the National Radio Astronomy Observatory in Green Bank, WV. NRAO was such a great partner for us, providing housing for our crew as well as some equipment that we needed.  Mike found out about auditions, came down and just knocked it out of the park.

And, Homer Hunter, who plays Delbert and just about steals the film away from everyone else in it, is also a local and man, we were lucky to get him. He’d never acted a day in his life, but you sure wouldn’t know it by his performance.

Beyond that, the locals were just an incredible help, providing transportation for some of our cast and crew, lending us equipment, bringing food to the set to keep everyone happy and well fed (seriously well fed!), volunteering countless hours to help bring this film to life. You can look at the long list of credits and see there were so many people to thank. It was incredibly humbling.

Q: The UK is quickly becoming a leader in dementia research and advocacy. Do you plan to distribute the film in Europe?

KD: It’s certainly a possibility! The more buzz we can continue to build through our screening series, the more likely we are to be able to leverage that into a wider distribution (both U.S. and International). We’ve got people knocking on doors, just need the right door to open up.  

Q: What’s next for J.T. Arbogast and Kimberly Dilts? Can we expect to see another film?

JT: Our next project involves a very comfortable bed, preferably near a beach, and we are tentatively calling it, “Sleep”.  It’s been a very long road to getting this film made and, right now, we can’t even see beyond the challenges of getting through the week!  That being said, we have a couple of other projects that we are kicking around that could be next on the docket.  Ask us again in a couple of months.

Upcoming Screenings

If you haven’t seen the film yet, there are plenty of opportunities coming up through the rest of this month and into October.

September
Elkins, WV:  9/8, 9/10, 9/11, 9/12
Austin, TX:  9/17
San Antonio, TX:  9/18
Lynchburg, VA:  9/19
Ripley, WV:  9/29
South Charleston, WV:  9/30

October
Bristol, VA:  10/1
Winchester, VA:  10/2
Marlinton, WV:  10/3
Lewisburg, WV:  10/6
Bridgeport, WV: 10/8

  
  
  
  
  
  
  
  
apmarqueeFor ticket information, visit the website, and remember if you don’t see your town on the schedule, YOU have the power to make it happen. Just visit Tugg for more information or feel free to leave a comment or drop me an email if I can answer any questions.

The Latest

I also learned this week that Tugg just launched an exciting new tool allowing folks to host screenings in a non-theatre setting. If you know of a community organization that might want to screen the movie for their constituents, a license to show it in a community center, church, school, et cetera, can be purchased for a low flat-rate on Tugg’s website.  With this option, there are no restrictions on ticketing.

Would your local chapter of the Alzheimer’s Association be willing to host a community screening? If so, please share this information with them or any other organization you think might be interested! More information can be found at: http://licenses.tugg.com/products/angels-perch.

In addition, the film will be available On Demand via most cable operators in early winter, as well as on DVD/Blu-ray. Would you like to be among the first to know when it will be released through those channels? If so, take a minute to visit http://www.angelsperch.com, and click the Join the Mailing List button!

World Alzheimer’s Month

September is World Alzheimer’s Month, and what better way to get involved than to help promote this wonderful movie or take the lead in bringing it to your city! For me, it was a lovely experience and a real joy to see how much people appreciated the chance to see it locally.

Until next time, go out and Paint the World Purple!!


   
A special note of thanks to J.T. and Kim for taking time out of their busy schedules to do this Q&A!
   
-Photos courtesy of Angel’s Perch

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

Remembering…

02 Monday Sep 2013

Posted by Ann Napoletan in 4M, Advocacy and Awareness, Behaviors, Eason House, End of Life Signs, Expectations, Heartland, Hospice, Mom, Ruminations, Uncategorized, Weight Loss

≈ Leave a comment

Tags

alzheimers, dementia, end of life signs, hospice

mom angelsIt’s nearly impossible to believe a year has passed since Mom began her sharp and unexpectedly rapid decline at the hand of Alzheimer’s.  It was about this time in 2012 that I realized scheduling a big vacation months in advance was a bad idea. At the time, though, things were “okay”… who knew what a difference one summer could make.

Praying for Comfort

There were fewer and fewer good days; she wasn’t eating – beginning to even turn her nose up at some of her favorite sweets – and was losing weight quickly. From that point on, her diet consisted primarily of Ensure until the end. Oh how excited we felt when she would eat a cracker or a couple of grapes; more than that and it was as though we’d hit the lottery, we were downright joyous!

photo-58In those weeks, it was indescribably painful to see her so distraught; screaming, hitting her head, and often inconsolable. In the few rare peaceful moments she had, she would stare at the ceiling, entranced, with a soft smile on her face and eyes almost sparkling. There’s not a doubt in my mind it was the very beginning of her transition. As upsetting as it was, seeing her at peace like that was also an incredible relief, but those moments of respite never lasted long.  All too soon, the terror she was obviously feeling would return.

Time For Hospice?

Finally, the time came where I knew I needed to make a decision. I called hospice to have them come out and do an assessment; unfortunately, we had a mind blowing, horrific experience with the intake nurse. I ended up asking her to leave before the process had been completed. On Monday, I called the office and told them to destroy the paperwork – I had changed my mind (there’s more to the story…).

It was the beginning of the final dizzying, nausea-inducing rollercoaster ride that lasted for the next 3 or so months. I thought I had seen it all, but I hadn’t seen anything yet…

Hopelessly Unpredictable Progression

So crazy to think earlier that same year I truly thought that she could easily live another 10 years or more. Physically, she was strong. But things can – and often do – change very rapidly where this disease is concerned.

Mom wasn’t done fighting, though. While she never bounced back to where she had been, she did turn things around one more time – for a short spell – before that final downward spiral. I went from being certain she only had weeks left to believing she might actually rebound; however, that was not the case. Amazing how your mind plays games, but with this disease, “rebound” is a very relative term…

_____

If you would like to help us raise awareness, research dollars, and funds to help families on this journey right now, visit Marilyn’s Mighty Memory Makers’ page to join the team or make a monetary donation. In just two weeks, we’ll be walking to #ENDALZ.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...
← Older posts
Newer posts →
© Copyright 2025
All Rights Reserved
The Long and Winding Road

Marilyn, BA (before Alzheimer's)

Contributor

Contributor

Recent Posts

  • The Latest Alzheimer’s Research Developments
  • National Caregivers’ Day: February 21, 2025
  • June 7, 2021: A Historic Day
  • UsAgainstAlzheimer’s National Alzheimer’s Summit: Don’t Miss It!
  • Happy 84th Birthday, Mom.

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 443 other subscribers

Archives

Blog Directory & Business Pages at OnToplist.com

Blog Stats

  • 144,844 hits

Meta

  • Create account
  • Log in
  • Entries feed
  • Comments feed
  • WordPress.com
stats for wordpress

Categories

Popular Posts

  • About Me
  • Thank you!
  • A Special Bond
  • Monday ... on Caregivers
  • Telling the Story
  • Hiding In the Canned Goods Aisle...and Other Stuff
  • Walking a mile in his shoes...
  • CGSN: Focus on YOU!
  • Look for me on VoiceQuilt!
  • Caregiving: Imperfections, Weaknesses, Acceptance, and Forgiveness

Recent Comments

  • Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s | The Long and Winding Road… (alzjourney.com) | Ann Campanella on Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s
  • Betty Trimble on Film Review: Angel’s Perch
  • Carol on Caregiver PTSD: Fact or Fiction?
  • (3) Ritamae Reichardt on When Caring Takes Courage: A MUST HAVE Caregiving Guide
  • Mary Jo George on June 7, 2021: A Historic Day

Pages

  • 2013-2014 News Archive
  • Helpful Resources
  • Latest News & Events
  • Postmaster General Letter – Alzheimer’s Semipostal
  • R E S I S T Resources
  • Reading List
  • Recommended Blogs
  • About Me
  • Contact Me
Coming Soon!
Marilyn's Legacy: A World Without Alzheimer's, Inc.
Stay tuned!!

Blog at WordPress.com.

  • Subscribe Subscribed
    • The Long and Winding Road...
    • Join 443 other subscribers
    • Already have a WordPress.com account? Log in now.
    • The Long and Winding Road...
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d